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FLORIDA STATE UNIVERSITY

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About
- About Us
- Faculty & Staff
Programs
News & Events
- 2026
- 2025
- 2024
Publications
Donate
Contact

FSU | Florida Institute for Pediatric Rare Diseases

Program News

SUNSHINE GENETICS

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Program News

As Florida Launches Newborn Genetic Screening Program, FSU Institute Leads Statewide Effort

(June 10, 2026)

IPRD & A.J. Anderson Foundation Launch Powerful Rare Disease Event

(June 3, 2026)

a woman speaking and gesturing with her hand at a wooden podium labeled

Florida Association of Genetic Counselors Annual Conference

(May 1, 2026)

Sunshine Genetics adopts a tier 1 condition list from the BEACONS study

(Feb. 4, 2026)

Close-up of a glowing, multicolored DNA double helix with the date

GeneDx to Partner with Florida’s Sunshine Genetics Network, Launching Nation’s First State-Backed Genomic Newborn Screening Program

(Oct. 13, 2025)

A group of approximately 15 people stands behind a long conference table in a modern meeting room. In the top left corner, there is a large, solid maroon rectangle with the text

First Formal Sunshine Genetics Steering Committee

(Oct. 10, 2025)

A commemorative poster for the Sunshine Genetics initiative, signed by various individuals and featuring the logos of partner institutions including FIU, Florida State University, Nicklaus Children's Hospital, UF, University of Miami, and USF Health. A maroon box in the top-left corner features the text

USF Joins Statewide Effort to Expand Newborn Genetic Screening and Genomic Medicine

(Aug. 15, 2025)

A close-up of a small, square, black-and-gold electronic chip resting on the tip of a person's index finger in a laboratory setting. A maroon box in the top-left corner features the text

Florida Sunshine Genetics Act Becomes Law, Funding Newborn Genome Sequencing Pilot

(July 11, 2025)

Florida Representative Adam Anderson and FSU President Richard McCullough stand together outdoors on the FSU campus, smiling as they jointly hold an oversized ceremonial check. The check is made out to the Institute for Pediatric Rare Diseases in the amount of $2,000,000. A maroon box in the top-left corner features the text

Sunshine Genetics Act News Conference

(July 9, 2025)

Florida Institute for Pediatric Rare Disease

FSU College of Medicine

1115 W. Call Street

Tallahassee, FL 32304

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