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2026 News

2026 News & Events

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IPRD RESEARCHERS
RARE DISEASE NEWS
EVENTS
TIMELINE

IPRD RESEARCHERS
RARE DISEASE NEWS
EVENTS
TIMELINE

IPRD RESEARCHERS

Six professionals stand in a row for a group photo in front of a green backdrop with a calendar graphic in the upper left corner marking April 14.

Cynthia Vied, Ph.D., Shares Insights at Quest Diagnostics FOCUS Leadership Series

(April 14, 2026)

Three people smile together in a photo with a maroon border featuring the date

Leanne Duke, Ph.D., Receives Prestigious Early Career Investigator Award

(March 17, 2026)

A smiling woman with dark curly hair and glasses is pictured next to a maroon box that reads

Ashley Cannon, Ph.D., M.S., CGC, the Inaugural Director of the IPRD Master’s Program in Genetic Counseling

(March 11, 2026)

A man in a suit and glasses speaks at a wooden podium with a floral arrangement behind him and a maroon box in the top left corner that reads

IPRD Commemorates Rare Disease Day 2026 with National Leaders in Genomics

(Feb. 27, 2026)

Two women in white lab coats and black gloves review data on a large Illumina monitor in a laboratory next to a maroon box that reads

Illumina Whole-Genome Sequencing Technology to Accelerate Rare Disease Testing in Florida

(Feb. 27, 2026)

A digital display of medical brain scans with red highlighted areas and the date Feb. 18 in the upper-left corner.

“Shared and distinct phenotypic profiles among neuro-developmental disorder genes”

Janelle Stanton, Ph.D.; David Ledbetter, Ph.D.(Feb. 18, 2026)

Saanchi stands smiling on a sunny campus, wearing a light gray dress, with greenery, flowers, and brick arches behind her with the text

Saanchi Shah, Ph.D., Awarded First Year Assistant Professor (FYAP) Grant

(Feb. 6, 2026)

A laboratory technician wearing black gloves places a strip of clear PCR tubes into a thermal cycler, with a

IPRD 2026 Research Projects Announced

(Jan. 26, 2026)

An illustration of a DNA double helix being edited is shown next to the text

“CRISPR-Cas editing technologies for viral-mediated gene therapies of human diseases: Mechanisms, progress, and challenges”

Boris Kantor, Ph.D.; Leanne Duke, Ph.D.; Pradeep Bhide, Ph.D.(Jan. 13, 2026)

RARE DISEASE NEWS

Graphic for April 23 featuring a glowing blue digital ear composed of particles against a dark, shimmering background.

FDA Approval of Regeneron’s Hearing Loss Gene Therapy Breaks Barriers

(April 23, 2026)

A gloved hand points toward a digital checkmark overlaying a row of amber medicine vials, with a garnet border in the upper-left corner featuring the text

FDA Approves Drug to Treat Neurologic Manifestations of Hunter Syndrome

(March 25, 2026)

An abstract 3D DNA double helix is shown alongside floating sequences of genetic code and a maroon box in the top left corner that reads

Protecting Genetic Information in Insurance: Florida Leads the Nation

(March 9, 2026)

Florida Institute for Pediatric Rare Diseases will Host Rare Disease Day symposium and Panel Discussion

(Feb. 23, 2026)

A man in a suit and striped tie speaks at a podium in front of an FSU backdrop next to a maroon box reading

Florida Law Models What Genetic Disease Testing Could Be

(Feb. 10, 2026)

Sunshine Genetics Adopts a Tier 1 Condition List from the BEACONS Study

(Feb. 4, 2026)

EVENTS

Four women pose together in front of a monitor with a garnet border in the upper-left corner featuring the text

IPRD Supports Accessible Housing at Local Independence Landing Fundraiser

(March 31, 2026)

A man in a suit and glasses speaks at a wooden podium with a floral arrangement behind him and a maroon box in the top left corner that reads

IPRD Commemorates Rare Disease Day 2026 with National Leaders in Genomics

(Feb. 27, 2026)

TIMELINE

Florida Institute for Pediatric Rare Disease

FSU College of Medicine

1115 W. Call Street

Tallahassee, FL 32304

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1115 West Call Street | Tallahassee, FL 32306-4300

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