General Resources
- Florida House Resolution 8005
- Florida House Resolution 8049
- Florida’s Rare Action Network
- Genetic Alliance UK
- NIH Genetic and Rare Diseases Information Center
- NORD's A Patient-Centered Approach to Research and Treatment
- Orphan Drug Act
- Project Baby Manatee
- Rare Pediatric Diseases Research Grant Program
- Top 5 Reasons to Study Rare and Undiagnosed Disease
Specific Resources
- Alström syndrome
- Arrhythmogenic Cardiomyopathy
- Atypical Teratoid/Rhabdoid Tumor (ATRT)
- Brain organoids
- Congenital hyperinsulinemia
- Developmental and Epileptic Encephalopathies
- Duchenne muscular dystrophy
- Fish odor syndrome
- Fragile X syndrome
- KGB Syndrome
- Myasthenia Gravis
- Multiple sclerosis
- Pediatric cardiomyopathy
- Pediatric glioblastoma
- Pediatric glioblastoma multiforme
- Pediatric high-grade glioma
- Pediatric hypercholesterolemia
- Prader-Willi syndrome
- Sickle Cell Diseases
- Tay-Sachs disease
- YWHAG Research Foundation