2024
- Broad scientists identify an ultrarare disease caused by a mutation in CHASERR IncRNA, a long non-coding RNA (October 23, 2024)
- New FSU Institute researching Rare Pediatric Diseases (October 7, 2024)
- FSU Discovery Days launch includes $5 million check to fund pediatric rare disease research (October 7, 2024)
- Zatolmilast an experimental drug brings new hope for Fragile X patients (September 23, 2024)
- A new study by IPRD-supported scientists at FSU CoM offers novel insights into Fragile X syndrome (September 5, 2024)
- Little Miracles (August 31, 2024)
- Pasco County family raising awareness for Tay-Sachs Disease (August 19, 2024)
- Lawmaker giving hope to kids with rare diseases after losing his 4-year-old son (August 16, 2024)
- IPRD supported scientist reports potential new approach to treat pediatric brain tumors (August 12, 2024)
- Florida hopes to reduce 'diagnostic odyssey' for children with rare diseases (July 22, 2024)
- FDA Expands Approval of Gene Therapy for Patients with Duchenne Muscular Dystrophy (June 20, 2024)
- Gov. DeSantis Signs Three Healthcare Bills to Address Cancer and Rare Diseases (June 19, 2024)
- Gov. Ron DeSantis Announcing Signing of Andrew John Anderson Pediatric Rare Disease Grant Program (June 19, 2024)
- Florida State University looks to continue momentum with vital state funding (June 13, 2024)
- Transformative Institute for Pediatric Rare Diseases building momentum (June 12, 2024)
- Teach RARE: FSU Institute for Pediatric Rare Diseases (April 5, 2024)
- How one little boy's story led to the Institute for Pediatric Rare Disease at Florida State (Feb. 19, 2024)
- 'A giant leap': Lawmaker announces FSU's new Institute for Pediatric Rare Diseases (Feb. 1, 2024)
- FSU Launches groundbreaking Institute for Pediatric Rare Diseases (Feb. 1, 2024)
- Rare Pediatric Diseases Research Grant Program (Jan. 25, 2024)
- Groundbreaking Institute for Pediatric Rare Diseases launched at FSU College of Medicine