Andrew Anderson suffered from Tay-Sachs disease , an ultrarare fatal genetic disorder with only 16 cases annually nationwide. Andrew passed away at just 4 years old. Since then, Andrew’s parents Florida Representative Adam Anderson (R-Palm Harbor) and Brianne Anderson and their family have been leading the drive to advance research in rare diseases here in Florida and across the nation.
The Institute for Pediatric Rare Diseases stands as a tribute to Andrew’s Story and the dedication of a father to do everything possible so that no other child or parent must feel helpless when faced with a rare disease diagnosis.
Recent News:
- Little Miracles
(August 31, 2024)
- Pasco County family raising awareness for Tay Sachs Disease
(August 19, 2024)
- Lawmaker giving hope to kids with rare diseases after losing his 4-year-old son
(August 16, 2024)
- Florida hopes to reduce 'diagnostic odyssey' for children with rare diseases
(July 22, 2024
- How one little boy's story led to the Institute for Pediatric Rare Disease at Florida State
(Feb. 19, 2024)
- 'A giant leap': Lawmaker announces FSU's new Institute for Pediatric Rare Diseases (Feb. 1, 2024)